“…We are perplexed, but not driven to despair.”
It’s been weeks of processing, crying, need-meeting, trying to adjust my expectations, feeling how up-in-the-air our lives are, and wondering when we will ever feel settled again. I feel absolutely spent. I have been thrust into a plot line I would never, ever choose.
Our church had a parent commissioning for families with new babies a few weeks ago, and I sat in a room full of beaming couples with their healthy, beautiful babies – safe and sound and whole…and my broken one. My precious, tiny son with his brain cysts and spina bifida and swollen ventricles and cerebellum gaps and a shaky future full of scary possibilities. I was heartbroken for him.
For weeks, I have been crying out to the Lord for joy that overflows and peace that passes understanding and strength that overcomes this awful situation. I’ve been searching his word for guidance for how to walk through this. I’ve been reaching for a hope that touches my grief. I know there’s nowhere else to turn. I know that the Bible is precious and life-giving. But this is painful at a level that its promises don’t seem to touch. I look at them and I repeat them and I remember that God is working things for good and that, in eternity, everything will be healed and whole, but my baby hadn’t even made it 20 days from his first breath and he was back in the hospital. We’d had just 5 weeks of newborn snuggles when we started discussions on which brain surgery would be best for him. We had held on with all our might through this pregnancy. Little did we know how we would struggle on the other side of it.
I climb into bed each night so relieved that I’ll be unconscious soon and I lay in bed each morning, trying to rally for another day in a story I don’t want to be living. I have no control here. Not over this. This is not something I can study for or work hard enough to fix. In a moment, it didn’t matter what I had wanted my life to look like. It rearranged itself around a new priority, and I watched, helpless as the pieces fell into place for a role where my training didn’t apply and my desires didn’t matter.
This is do-what-needs-to-be-done territory. This is a hold-our-whole-lives-before-the-Lord season, because we are helpless here, and all we can do is look to Him. We are discouraged, and fighting to cling to our hope. We are weary, and we are learning what hard work it is to do the good God has set before us and not lose heart – to be content with the good He has set before us in place of the good we had in mind. To trust in our disappointment that He is our helper and that He has not abandoned us. We are fighting a battle with our own hearts to entrust our baby and our story to Him.
Here is what I’m working to remember:
I have no control, but the One who has all the control is very good, and He loves Benaiah very much. He is for us. He has planned good things for us since long ago. Our lives are his masterpiece, not the jumbled, broken wreck it feels like at the moment. We are confused, but He is faithfully ordering our steps. (Ephesians 2:8-10)
Benaiah has some things that didn’t form well, but who he is was formed with great care. God not only created the temporary body, He crafted the precious, eternal soul living in it. Benaiah is more than just his body and his brokenness. With all that needs treatment, yet he is wonderfully made. (Psalm 139:14)
Peace that guards my heart and mind comes in proportion to my choice to fix my thoughts on the Lord, cast my cares on Him, and refuse to worry. His peace doesn’t fall short, but I do fall short of stepping into it. I am begging Him to help me here. To help me to fight the temptation to back away from Him in my disappointment, confusion, frustration and fear. He is ready to hold me, guard me, comfort me, and walk me through this if I will throw myself and my troubles onto Him, whole-heartedly trusting his faithfulness and his care for me. (Isaiah 26:3-4)
We are looking at this unexpected season before us and asking you for help. We don’t know what to do, but our eyes are on you.
I believe this next year can be full of your grace. Your grace for all the appointments. Your grace in the surgeons and doctors you provide to care for Benaiah. Your grace over his surgery and procedures. Your grace for parenting and marriage, even out of our brokenness. Your grace in orchestrating a way for us to serve that is a good fit, here and now. Your grace at work in our hearts to teach us to trust you, to endure, and to be satisfied in you through the waiting. Your grace to keep hoping you will make a way for Cody to fly again. Your grace in our relationships. Your grace for all we’ve lost and left behind.
Your grace will be sufficient for us. And this year, I believe we’ll see it again and again and again. Lord, give us the eyes to recognize your grace in the hardship. Help our hearts to find your peace as we gaze at who you are. Teach us to trust you when we feel perplexed, that our hearts may face each next moment with courage. When we cling to you, we will not be driven to despair. You’re worthy of our trust. Lord, help our unbelief.