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“In the years since our lives changed forever…”
It was a humble, short phrase, soaked with intention. The author was Katherine Wolf, survivor of a brain stem stroke that disabled her body, her speech, her face, and nearly claimed her life in her early twenties.
But she didn’t write, “In the years since my devastating stroke…” She didn’t even name what happened to her. She didn’t say “ruined.” Instead, she expressed the lasting impact of the stroke by using the phrase, “changed forever.” Katherine refused to turn her story over to be a narrative of only damage.
I wanted that same intention in how I frame what we’ve walked through, but I didn’t know how to get there. So, I started asking the Lord to give me His words for my story.
When I try to explain it, it goes like this:
(If you already know it, feel free to skip ahead.)
We studied for years and worked hard to pay for the flight training needed to prepare for an aviation ministry overseas. We sold our vehicles and belongings and moved our entire lives to Papua New Guinea to support missionaries working to translate the word of God into new languages. We studied the trade language for months to be able to live and function in the country. Then we got pregnant with our second baby. It was a brutal pregnancy filled with unrelenting nausea and vomiting that we could not get under control even with the prescription medications the doctors at our base were able to give me. We fought to handle it with IV fluids a few times a week and support from our co-workers to feed and care for our family while Cody continued in simulator training and working on the planes in the hangar.
Seventeen weeks into the pregnancy, our leadership and medical staff sent us back to the U.S. to receive more complex medical care. I was placed on a pump, constantly infusing nausea medication, then hospitalized for a cardiac arrhythmia that was contributing to how fatigued and weak I felt. I came home with a wearable defibrillator and an implanted heart monitor, then gave birth in the ICU. Shortly after we got the baby home, he began having eye tremors. We took him to the hospital and found that he had fluid compressing and leaking into his brain tissue, cysts in two parts of his brain, and another part that never formed at all. We delayed our return to Papua New Guinea and set up housing and interim work serving at the mission’s retirement home for the next year, which we spent getting frequent brains scans for the baby, trialing a medication to slow down the fluid, and seeing specialists. Each time we thought we were in the clear and could return to our home overseas, another issue came up with either Benaiah, Cody, or I that we had to address: surgery for a birth defect, surgery for ear infections, appendicitis, a tumor too deep to biopsy, speech delays, nervous system disorders, and then, daily migraines which forfeited Cody’s ability to renew his flight medical. Finally, we tried to go back to Papua New Guinea, in a mechanic role, to give whatever we had left, and two things happened. One, another evaluation revealed new delays with the recommendation for more support and early intervention for our child. Two, we felt an unexpected peace that there was something new the Lord had for us to press into: a ministry of comfort and encouragement to missionaries and ministry workers who are struggling.
People can ask me a simple question and sometimes I’ve wrestled that information into a straightforward answer, but sometimes it still unleashes a flood of emotion, frustration, and unexpected detail. Sometimes, I shut the topic down and pack all that untidiness away.
We can be like that with our stories.
Many of our lives take us on trajectories we never wanted or expected. I know the Lord had purpose in it. But I’ve struggled as we’ve made the pivot into this new and good thing before us. It meant letting go of trying to get back to our life in Papua New Guinea. It meant accepting that our lives had changed forever. And it was heart-breaking.
But reading Katherine’s words was a reminder that even our hardest stories are more than what has happened to us or what we’ve lost, and I wanted a way to talk and think about mine that reflected God’s unfaltering intentions and purposes, not just my heartache and confusion.
So I took some intentional time to put away distractions with the purpose of asking the Lord to meet me in the discomfort that I normally numb. I tried to breathe through many, many uncomfortable thoughts and just invite Jesus into those moments.
Comfort me, Lord. Give me your words for my story. Uproot anything that’s untrue. Plant your truth deep in its place.
For a few weeks I have been praying this, and I wanted to share a passage the Lord challenged me with as I sought Him in his word. Right smack in the middle of the powerhouse book of Philippians, Paul takes a moment to talk about Epaphroditus, a man who risked his life for the sake of Christ:
“Meanwhile, I thought I should send Epaphroditus back to you. He is a true brother, co-worker, and fellow soldier. And he was your messenger to help me in my need. I am sending him because he has been longing to see you, and he was very distressed that you heard he was ill. And he certainly was ill; in fact, he almost died. But God had mercy on him – and also on me, so that I would not have one sorrow after another. So I am all the more anxious to send him back to you, for I know you will be glad to see him, and then I will not be so worried about you. Welcome him in the Lord’s love and with great joy, and give him the honor that people like him deserve. For he risked his life for the work of Christ, and he was at the point of death while doing for me what you couldn’t do from far away.”
-Philippians 2:25-30
Here’s what I had never noticed before: Epaphroditus risked his life for the sake of Christ by getting sick.
Does this sound familiar?
My breath caught and I started to object, “But Lord, I didn’t stay to the point of death itself…”
Epaphroditus wanted to keep going. He wanted to give more than he had to give. He got sent back from something that was really important to him. He got sick. This was not his plan. His story is here for a reason. Do you want my words for your story? Look at how I describe his.
I studied the words used to depict Epaphroditus:
True brother, co-worker, fellow soldier. Welcome him with love and great joy. Give the honor people like him deserve.
I sat quietly with this passage, and I felt a gentle question nudge my heart:
“What if I honor the very thing that fills you with shame?”
Epaphroditus never would have written these things about himself. Nor would I describe myself that way. But I’m writing down this wrestling because I don’t think I’m the only one carrying around a bitter accusation that what I tried to give to the Lord was lost. And I think He confronted me on this because He thinks differently than you or I.
Lost? What do you mean? You offered it to me. As you walk with me, what you lose, give up, or suffer, I count as an offering.
Epaphroditus was upset that the Philippian church even found out he had been sick. But God inspired Paul to write these glowing words about a man who was being sent home. A man whose service was affected and interrupted by an illness totally outside his control.
I get honoring great sacrifice when I see what it accomplished. When hardship happens and it gets in the way and erodes what I am able to give; when I see cost, but I can’t trace out how it could be worthwhile…other words come to mind.
What was all of that? Why did we train for years and leave everything to give our lives to the work of spreading the Gospel only to end up hospitalized and scrambling to figure out housing back in the United States?
How useless. What a waste.
Those are the painful words that have painted my disappointment with extra sting.
What are yours?
My aching friends, God doesn’t think the same way we do.
He didn’t just see Epaphroditus’ body, taken down by illness, falling short of all he may have wanted to accomplish. God saw his heart.
He sees yours and mine, too, even when we are spent and there’s so much more need beyond our reach. Even when it all falls apart and we’re trying to rally, but we’re limping and frustrated and filled with doubt. Even when, like Epaphroditus, we’d rather people not even know how desperate things got. Even when we’ve tried to do something good and it blows up in our face.
“…Man looks at the outward appearance, but the Lord looks at the heart.”
-1 Samuel 16:7
God doesn’t look at weakness or sickness with annoyance like you and I might. He’s not surprised when it disrupts our plans. He’s not stuck on how it’s holding us back. He tells us we can boast all the more gladly about our weakness, because it is in that weakness (not once we get past it) that his power rests on us and that we find His grace sufficient. The unexpected stuff that hits our lives is part of the course that He’s marked out for us, even and especially when it gets in the way of what we wanted to offer.
This week, as I’ve continued asking the Lord to give me His words for my story, I was reading Malachi chapter 3 and I came across this:
““Your words against me are harsh,” says the Lord.
Yet you ask, “What have we spoken against you?”
You have said, “It is useless to serve God…”
And again, I was challenged. When I say, “What a waste. How useless.” Not only are those NOT God’s words for anything my story has held, but while leaning on my own understanding, I am speaking harshly against Him. I’m looking at the short timeline and the visible things I can wrap my human brain around and declaring that since this didn’t turn out the way I hoped, it was a waste. But here’s the truth,
“So, my dear brothers and sisters, be strong and immovable. Always work enthusiastically for the Lord, for you know that nothing you do for the Lord is ever useless.”
-1 Corinthians 15:58
Why would Paul need to write that to the church at Corinth? Because life is full of trouble and ministry is hard. Sometimes, it feels useless. So we need the truth that it is never useless.
If you’re spent and hurting and fighting with the lie that it’s not worth it. I’m going to repeat it again. This is what God has to say. Here’s your sword, pick it up:
NOTHING YOU DO FOR THE LORD IS EVER USELESS.
NOTHING YOU’VE DONE FOR THE LORD WAS EVER A WASTE.
In this life you will have trouble. But take heart. He is using those troubles.
Sometimes, it’s not the satisfying moments when it all comes together, it’s the hollow ones when it all comes apart where we learn to treasure and be satisfied in Him. Sometimes, He’s doing something new we never saw coming. Sometimes, waiting feels like defeat, but it’s not.
“So let’s not get tired of doing what is good. At just the right time, we will reap a harvest of blessing if we don’t give up.”
-Galatians 6:9
Epaphroditus carried the letter of Philippians from Paul to the church of Philippi. Maybe he carried the weight of disappointment on that long trek back, too.
Why, Lord, when I came all this way, would you let me get that sick?
But in leaving his ministry in Rome behind, Epaphroditus served as the courier that made it possible for you and I to read the words, “I can do all things through Christ who gives me strength.”
We have Philippians because Epaphroditus carried it back when he was sent home unexpectedly.
Maybe you, too, are carrying a message that God has crafted to strengthen and encourage and comfort, out of the very disappointment that has left your heart heavy, and you yourself just haven’t laid eyes on it yet.
Can you imagine the look on Epaphroditus’ face when Paul’s description of him was read out loud to the whole church?
I bet that same shocked, humbled feeling would overcome our hearts if we got a good glimpse of the way the Lord sees us. And I imagine He would say:
When I speak about you with grace, joy, hope, and satisfaction. Don’t argue. Take it in. This is who you are because of my Son. Welcomed, loved, honored, upright. Whether you’re making headway or collapsing under duress. When you’re strong and when you’re weak. I love you. I have always loved you. And I’m looking for your heart, not for what you have to offer me.
“So we have stopped evaluating others from a human point of view. At one time we thought of Christ merely from a human point of view. How differently we know him now!“
-2 Corinthians 5:16
“For the eyes of the Lord run to and fro throughout the whole earth, to show Himself strong on behalf of those whose heart is loyal to Him...”
-2 Chronicles 16:9
When Hebrews 12 tells us to lay aside every weight, I think a good portion of it might be wrong descriptions of ourselves, and heavy, stinging versions of our stories that speak harshly of their author. Let’s not carry those around anymore. Life is heavy enough. But our God, full of grace and truth, has spoken new things over us, and He promises that there is a bigger story happening with the suffering and loss we can’t make sense of.
What if we took a deep breath of trust, moved into those dark, hurting places, held it all up to the Lord, and asked Him for His version? What if He’s gentle to us? What if He comforts us? What if He give us rest for our souls?
Lord,
I trust you, here and now, that this is the path you’ve marked out for me and you’re doing more with it than I could ever grasp. So, I will not call “loss” what you call “offering.” I trust how you describe me, even when I see all my issues, and I will take my stand behind the breastplate of your perfect righteousness, which has been applied to me in Christ, to extinguish every fiery dart of accusation my enemy would hurl at my heart, and every harsh word he would speak about my story.
I will not agree with him by speaking of you or of me in that way. Fill my heart instead with your truth, your words, and your peace.
“Unless the Lord had helped me, I would soon have settled in the silence of the grave. I cried out, “I am slipping!” but your unfailing love, O Lord, supported me. When doubts filled my mind, your comfort gave me renewed hope and cheer.”
-Psalm 94:17-19
““Each time He said, “My grace is all you need. My power works best in weakness.” So now I am glad to boast about my weaknesses, so that the power of Christ can work through me. That’s why I take pleasure in my weaknesses, and in the insults, hardships, persecutions, and troubles that I suffer for Christ. For when I am weak, then I am strong.”
-2 Corinthians 12:9-10
My favorite is one that I lean on when I cannot make sense of something going on in my life….God waste nothing. The same God who hangs the earth on nothing. Job26:7. The same God who hung the earth on nothing, waste nothing. When the bottom falls out of life I run to that chapter in Job…it reminds me of what I tend to forget in my trial, if He can hand the earth, moon, sun and stars on nothing He will give me the wisdom needed to live through whatever is happening. We can gain deep understanding of who God is when we trust Him. Another great post , you are a good writer, keep it up. Betty
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